"Hi, I'm Lorelei."
It is absolutely adorable to watch Lorelei interact with people. No matter who they are or what their status in life might be she greets them all the same. A handshake and a sweet little “Hi. I’m Lorelei.” I love that about her. Every person she meets is the most important person in her life at that point in time. It’s genuine.
She’s not aged or experienced enough to become intimidated or impressed by power or prestige. So, whether you are Aubrey McClendon, or Oklahoma City Police Chief Bill Citty, or little Kendrick Perkins Jr. you get the same from Lorelei. She might find out you were some “important or famous person” later and express that she wishes she’d known before meeting you, but I'm sure most much prefer her innocent and simple greeting.
With Lorelei, it’s all about you, not her.
She met some wonderful people today at the Make-A-Wish golf tournament and is very appreciative of all they do to support Make-A-Wish in providing wishes to kids. She was able to take photos with most of the 23 teams serving as the resident celebrity--winningest coach in NBA history. It was an honor to her to be able to thank them in person.
On another note, here’s some stuff about Lorelei. She wouldn’t want me to make a big deal about any of this because she hates that kind of attention but I figured I’d give an update on her health since that is primarily what this blog is for!
Lorelei had her 9th of twelve chemo rounds on Friday, June 1. This round was different because her doctor felt it wise to forego giving her the Bleomycin which is usually in her ABVD infusion. She’s been having asthma like symptoms and has developed a cough. Plus her sed rate has increased. Sed rate (sedimentation rate) goes up when there’s inflammation in the body. She’s reported much less nausea with this chemo infusion (that's great) but she’s more tired than ever before. We know the fatigue will be cummulative but her fatigue this time seems to me to be surprisingly high. Maybe this is just the new normal for Lorelei for the next few months but I hope not. I know it bothers her to be too weak to even hold a golf club. She passed up an opportunity to play on Oak Tree today. That’s crazy for a girl who loves golf! I wonder if the fatigue is worse because her breathing is affected. Whether or not the breathing issue is merely asthma, or if it is some sort of pulmonary toxicity from the chemo, please pray that the doctors get to the root cause and provide her some relief if possible. It’s very difficult to be 17 and want to do nothing but sleep while the rest of her peers enjoy busy fun summers preparing to go to college. Lorelei's oncologist ordered a pulmonary function test which she will take tomorrow at Integris Baptist Hospital.
Tonight she gets to Thunder Up! But from the comfort of our couch. We hope you all will be cheering on the team along with us. Be sure to notice the lime green wrist bands still being worn by the Thunder coaches and some of the players.
Thanks again for keeping Lorelei in your prayers.
Posted on Mon, June 4, 2012
by Andrea Decker