Biopsy Results--Refractory Hodgkin's Lymphoma

Dr. Geister called this evening. I don't think I've ever answered a phone call more quickly!

Based on his news, we have to admit we are still a little perplexed.

The biopsy results indicate we're still dealing with only Hodgkin's Lymphoma. That certainly seems like better news than having to fight two different cancer types. It is definitely better than having some rare form of an aggressively growing non-Hodgkin's Lymphoma. That should have felt like good news, but Lorelei admitted that she had previously been relieved to think that the new growth in her chest was a second type of cancer.  It would have explained so much and it would have made her feel like she'd beat the Hodgkin's and therefore she can beat this new one.

But instead it looks like we're dealing with a refractory and fast growing bulky Hodgkin's Lymphoma.  It's developed resistance to the ABVD treatment she endured for six months. At least ABVD was able to kill a lot of it and keep it from growing during those six months. But as soon as she came off the ABVD it began to grow, and quickly. So, where do we go from here?

Dr. Geister wants to see Lorelei tomorrow. He'll check her surgical incision to make sure it is healed enough for her to begin RICE chemotherapy ASAP. She may check into Baptist on Saturday or Sunday. But if not, definitely on Monday, August 6. She'll stay at Baptist through Thursday. Then, we'll leave Baptist and head immediately over to OU to meet with the transplant oncologist Dr. Jennifer Holter at 2:00 pm (Thursday August 9.) Please pray that Lorelei's nausea will be under control for that meeting so she can be fully engaged and Dr. Holter will see how mature she is and that she is definitely a fighter.

Dr. Holter will administer her autologous blood stem cell transplant. (Autologous means they will use her own stem cells. If her bone marrow is not clear of cancer we'll have to do an allogenic transplant using donor stem cells.) That should begin after her white count has recovered enough from the RICE chemo. We anticipate she'll be hospitalized for 3 to 6 weeks. Then, some time after recovering from the transplant she will follow it up with radiation.

More good news is that Lorelei's pain from the surgery last Monday is much better.

She's gonna beat this.

10 comments (Add your own)

1. Lori wrote:
Do they have donor cells on hand, or is there a way to donate?

Thu, August 2, 2012 @ 8:30 PM

2. Cousin Tiffany wrote:
I'm in the donor registry for bone marrow. I would love it if I were a match and could help! And yes, she won't let this win!

Thu, August 2, 2012 @ 9:10 PM

3. Kerri Ast wrote:
Absolutely she's gonna beat this. You can have my bone marrow too!

Thu, August 2, 2012 @ 9:16 PM

4. jen wrote:
Going to get on this bone marrow list once and for all. You are all in my prayers. And, yes, she will beat this.

Thu, August 2, 2012 @ 9:46 PM

5. Barbara cannon wrote:
I am also registered to be a marrow donor

Thu, August 2, 2012 @ 9:51 PM

6. Glynis wrote:
Praying, believing, hoping, crying, celebrating, and standing in the gap! Go Lorelei Go! We're with you!

Thu, August 2, 2012 @ 9:59 PM

7. Dave wrote:
YES!! Absolutely she will win! With all of us behind her and some one even bigger than all of us. GOD ON HER SIDE! VICTORY IN SIGHT!

Thu, August 2, 2012 @ 10:27 PM

8. Sharon and Ron Hendricks wrote:
Keeping you in our prayers. You sound like one tough young gal...with all your prayer warriors, you're gonna beat this!!

Fri, August 3, 2012 @ 2:12 PM

9. Sarah wrote:
Yes, she WILL beat this! I'f love to help out Lorelei too if I can! Praying for you girl!

Fri, August 3, 2012 @ 10:41 PM

10. Margaret Adams wrote:
Lorelei...I've never met you but I'm a close friend of your sweet grandmother, Connie. I've had you on my prayer list for awhile now and will continue as long as needed. Stay strong and don't give up, ever. You sound like a wonderful Christian girl with strong determination. I'm very proud of you. I know God has something wonderful for you in the future.

Sat, August 4, 2012 @ 4:37 PM

Add a New Comment


Comment Guidelines: No HTML is allowed. Off-topic or inappropriate comments will be edited or deleted. Thanks.

Donate to the Lorelei (Decker) Ross Support Trust

Psalm 91:14-16

New International Version (NIV)

14 “Because he loves me,” says the Lord, “I will rescue him; I will protect him, for he acknowledges my name.
15 He will call on me, and I will answer him; I will be with him in trouble, I will deliver him and honor him.
16 With long life I will satisfy him and show him my salvation."